NF Patients United – Global Network of Neurofibromatosis Patient Organisations

Best Practice Projects on NF

Meeting, NF community

European NF Meeting 2020 – goes online

NF community, Research

Children’s Tumor Foundation announces the launch of NF2 trial

Corona, NF community

Cultural Travels across Borders

2020-04-20 — 0 Comments

Koselugo: first medicine approved to treat plexiform neurofibromas in patients with NF

Corona, Organisation of Care

What does the ongoing COVID-19 situation mean for patients with NF?

virus children

Get Creative: Treating Self-Isolation Boredom with Drawings, Photos & Videos   

NF Research

Research update #1 2020 – NIH’s findings on Selumetinib

COVID-19 in NF Patients

European Conference on Rare Diseases & Orphan Products in Stockholm 2020 - ECDR

Meeting, Organisation of Care, Research

European Conference on Rare Diseases & Orphan Products in 2020 – ONLINE



		
					
			
				
				
					
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