Global Network of Neurofibromatosis Patient Organisations

Meeting, Organisation of Care, Research

European Conference on Rare Diseases & Orphan Products in 2020 – ONLINE

European Conference on Rare Diseases & Orphan Products in Stockholm 2020 - ECDR

The European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

The next ECRD will take place
on 15-16 May 2020 
*** ONLINE ***

The event draws together more than 800 participants from over 50 countries around the world. Leading, inspiring and engaging all stakeholders to take action, ECRD is where innovative solutions in the rare disease field are born. The Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators.

People living with a rare disease have the right to reach their highest potential of well-being. Join the ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services!

Information and Registration: