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DTSTART;VALUE=DATE:20261115
DTEND;VALUE=DATE:20261116
DTSTAMP:20261013T135013Z
CREATED:20260401T103808Z
LAST-MODIFIED:20261013T135013Z
UID:6697-1794700800-1794787199@www.nf-patients.eu
SUMMARY:NF Community Day & NF Best Practice
DESCRIPTION:The NF Community Day 2026 brings together patients\, caregivers\, and patient advocates from across Europe living with Neurofibromatosis type 1\, NF2-related Schwannomatosis and Schwannomatosis. It is a day to learn\, connect\, and be inspired — together with fellow members of the NF community\, patient advocates as well as medical experts and researchers. \nPROGRAM\nNF Community Day\n08:45 Welcome & Introduction by NF Patients United\n08:50 Summaries of the Scientific Conference from clinicians\, psychologist and patients view \nAwards ceremony\n09:50 NFPU Community Award: short presenation for the 3 best NF1 research projects\n10:05 The audience votes for the winner project with following NF1 award ceremony\n10:10 NFPU Community Award: short presenation for the 3 best NF2/SWN research projects\n10:25 The audience votes for the winner project with following NF2/SWN award ceremony \nNF Best Practice\n10:30 NF Best Practices from NF patient associations\n11:55 NF1 & SWN Parallel session by clinicians\, researchers and patient advocates \nNF Industry sessions\n14:00 Talk & discussion by Alexion about research\n14:00 Talk & discussion by Merck about research \nJoint final session\n15:35 Interactive Panel Discussion with NF Patient ambassadors\n16:15 Summary & GoodBye \nREGISTER FOR VIRTUAL PARTICIPATION\nhttps://www.nf-patients.eu/nfcd-2026-virtualregistration/ \n 
URL:https://www.nf-patients.eu/event/nfcd2026/
LOCATION:Virtual Meeting
CATEGORIES:NFPU best practice summit
ORGANIZER;CN="NF Patients United":MAILTO:info@nf-patients.eu
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