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DTSTART;VALUE=DATE:20250822
DTEND;VALUE=DATE:20250830
DTSTAMP:20260508T123305
CREATED:20250417T151637Z
LAST-MODIFIED:20250417T152231Z
UID:6334-1755820800-1756511999@www.nf-patients.eu
SUMMARY:NF Academy 2025
DESCRIPTION:The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In a one week training course there are lessons on medical topics for NF\, mental health and essentials for the work as an ambassador for other patients. This year the event is conducted together with our local NF member organisation ACNefi. \nFind out more:\nNF Academy 2025 – NF Patients United \nApplicate for the ambassador training:\nNF Academy 2025 – the ambassador training for young patients – NF Patients United
URL:https://www.nf-patients.eu/event/nf-academy-2025/
LOCATION:Hotel ILUNION Barcelona\, C/Ramón Turró\, 196-198\, Barcelona\, Cataluña\, 08005\, Spain
ATTACH;FMTTYPE=image/jpeg:https://www.nf-patients.eu/wp-content/uploads/2024/12/WhatsApp-Image-2024-08-28-at-16.05.22.jpeg
ORGANIZER;CN="NF Patients United":MAILTO:info@nf-patients.eu
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DTSTART;TZID=Europe/Amsterdam:20250503T093000
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DTSTAMP:20260508T123305
CREATED:20250324T111109Z
LAST-MODIFIED:20250424T090529Z
UID:5995-1746264600-1746286200@www.nf-patients.eu
SUMMARY:NF best practice summit 2025
DESCRIPTION:The NF Best Practice summit is a regular meeting for patients & caregivers organised by NF Patients United. Every year\, we host this best practices session to share recent developments and discuss future prospects with the NF community in Europe and beyond. The event will bring together patients\, researchers and academia.\nClosed captions are available for all sessions. \n  \nRegister for free virtual participation!\nPlease fill in one form per participant:\n\n\n\n\nRegistration: NF Best Practice Summit 2025\nRegistration: NF Best Practice Summit 2025\n\n\n\n\n\n\n\n    Name\n        *\n    \n    \n    \n    \n\n\n    Last Name\n        *\n    \n    \n    \n    \n\n\n    Email\n        *\n    \n    \n    \n    \n\n\n    Organisation\n        \n    \n    \n    \n    \n\n\n    Country of residence\n        \n    \n    \n    \n    \n\n\n    I register for the following sessions:\n        *\n    \n    					\n			 I participate in the entire program\n					\n			 9:30 - 10:00 Welcome by NF patients United\n					\n			 10:00 - 11:45 NF1 clinical aspects with panel discussion (parallel session)\n					\n			 10:00 - 11:45 NF2 related & non-NF2 related Schwannomatosis (parallel session)\n					\n			 11:45 - 12:00 Surprise moment of the NFPU conference\n					\n			 12:30 - 15:30 NF Best Practices & Future Directions\n					\n			 15:30 - 15:40 Conclusion & Goodbye\n\n    \n    \n\n\n	I am interested in these topics:\n		\n	\n						\n			 Adult care\n					\n			 Paediatric care\n					\n			 Research updates\n					\n			 New treatments & drug developement\n					\n			 Mental health\n					\n			 Advocating for patients\n					\n			 NF 1\n					\n			 NF2 related Schwannomatosis\n					\n			 Schwannomatosis\n\n	\n	\n\n\n    \n        *\n    \n    					\n			 I have read the Privacy Policy note. I agree that my details and data will be collected and stored electronically to answer my request.\n\n    \n    \n\n\n	\n\nSubmit\n\n\n\n	\n			\n			\n				If you are human\, leave this field blank.			\n			\n		\n		\n\n\n\nΔ\n \n\n \n\nSupport\nThe NF Best Practice Summit is kindly supported by: \n \n  \n \n 
URL:https://www.nf-patients.eu/event/nfbps-2025/
LOCATION:Hotel ILUNION Barcelona\, C/Ramón Turró\, 196-198\, Barcelona\, Cataluña\, 08005\, Spain
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ORGANIZER;CN="NF Patients United":MAILTO:info@nf-patients.eu
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