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DTSTART;VALUE=DATE:20250822
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SUMMARY:NF Academy 2025
DESCRIPTION:The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In a one week training course there are lessons on medical topics for NF\, mental health and essentials for the work as an ambassador for other patients. This year the event is conducted together with our local NF member organisation ACNefi. \nFind out more:\nNF Academy 2025 – NF Patients United \nApplicate for the ambassador training:\nNF Academy 2025 – the ambassador training for young patients – NF Patients United
URL:https://www.nf-patients.eu/event/nf-academy-2025/
LOCATION:Hotel ILUNION Barcelona\, C/Ramón Turró\, 196-198\, Barcelona\, Cataluña\, 08005\, Spain
ATTACH;FMTTYPE=image/jpeg:https://www.nf-patients.eu/wp-content/uploads/2024/12/WhatsApp-Image-2024-08-28-at-16.05.22.jpeg
ORGANIZER;CN="NF Patients United":MAILTO:info@nf-patients.eu
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DTSTART;VALUE=DATE:20261015
DTEND;VALUE=DATE:20261016
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SUMMARY:NF Community Day & NF Best Practice
DESCRIPTION:NF Community Day\n(morning)\nNeurofibormatosis research news\nTalks by experts\nfor NF patients & caregivers \nNF Best Practice\n(afternoon)\nTalks by NF patient organisations\nfor patient organisations \nREGISTRATION FOR FREE VIRTUAL PARTICIPATION FOLLOWS! \n 
URL:https://www.nf-patients.eu/event/nfcd2026/
LOCATION:Virtual Meeting
CATEGORIES:NFPU best practice summit
ORGANIZER;CN="NF Patients United":MAILTO:info@nf-patients.eu
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