Global Network of Neurofibromatosis Patient Organisations

NF Academy

NF Academy training

Educating young NF Ambassadors

In summer 2023 NF Patients United again launches its academy for young adults affected by Neurofibromatosis. It will be an educational program, a mixture of joint discussions and individual work. Young patients, or siblings of patients, will learn about NF1, NF2 and Schwannomatosis, patient advocacy, patient involvement in research and how to deal with the challenges that they are facing.

Our training will allow participants to become NF ambassadors and to work with patient organizations on a national level and with NFPU on a European level, and that way represent the interests of young NF patients. They will meet patients with the same condition from all over Europe and work together for a better future for NF patients πŸ’šπŸ’™

NF patient academy participants 2022
NF academy participants 2022

This is the NF Ambassador training 2023:

Location: Lisbon (Portugal)
Date: Aug. 25th – Sept. 1st, 2023
Participants can be patients, siblings or young parents of children with NF
Age group: 18 – 30 years
Diploma: Certificate as NF Ambassador


Registration for the NF Academy in 2023 is already closed. If you are interested to participate in a future editon of a young rare disease ambassador training, please let us know! Just send us a short email so that we can inform you early on any new events! Please email us:

Logo NF Academy 2023

Watch this video from our previous NF Academy:

Support the NF Academy

Help us to support the NF Academy for more young ambassadors. Our last years participants want to secure places for more young NF Patients. Please support the go fund me campaign:

Every donation, no matter how small, makes a difference.

The NF Patients Young Academy 2023 is conducted by NF Patients United together with the Portuguese NF patient organisation APNF

The NF patients academy is kindly supported by:

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