Welcome to the NF 50/50 Challenge, a social media challenge
to help defeat Neurofibromatosis. We’re glad to have you on board!
What is NF?
NF (Neurofibromatosis) is a genetic mutation that can cause over 100 potential symptoms. 2.5 million people are affected around the world. Patients can go blind, deaf, develop chronic pain or life threatening tumors on nerves anywhere in the body, amongst a large variety of other debilitating symptoms. Until now, there is no cure for this disease.
Those affected are often left in the dark: Limited access to proper care, lack of information or clinical trials, little awareness in the general public and among health care professionals. People with NF live with constant worry about their health, trying to cope with this highly unpredictable disease.
Why the NF 50/50 Challenge?
We want to use the power of social media for a good cause, to help those suffering from NF and have some fun at the same time! Every single person joining the #nf5050challenge will help raise awareness around NF amongst the general public. We will use this momentum to push for the much needed research on this disease, and to raise donations towards it. Together, we want to make a difference for people with NF – until they can finally get answers to the many questions they have.
Join us – Let’s have some fun and raise awareness for the people with Neurofibromatosis!
How do I join?
You can join the challenge from wherever you are. You only need water, salt and your phone!
Option 1: Just You
1. Fill two glasses with water and stir about a ½ teaspoon of salt into one of them. Stir it well so you can’t tell which of the two glasses has the salt in it.
2. Prep up your smartphone to film it!
3. A coin toss will now decide whether you have to finish the right or left glass. Now you say a few words about the 50% chance of getting Neurofibromatosis, and if you’d like to, any donation amount. With that, you support NF Patients to beat this disease through research.
4. Now drink! If you drink the salt water, you “lose” and the donation is doubled. Then, nominate 2 or more friends to join the challenge!
Option 2: With Friends
1. Invite one or more friends to participate in the challenge. It’s simple – prepare the glasses without showing your friends, and place them next to each other.
2. Prep up your smartphone to film it!
3. Ask the players to choose a glass, then say a few words about NF and drink them all together.
4. Optional – if you choose to donate: The “loser” who drank the salt water donates double the amount, the winners stay with the original amount. Who knows – maybe they will feel motivated to double their contribution as well!
THEN, POST YOUR VIDEO!
Post your challenge clip on Facebook, Instagram, TikTok or all three – the more, the better. Always use the hashtag #nf5050challenge and tag us!
Take a look at our #nf5050challenge champions:
Support people with Neurofibromatosis by donating
Via bank transfer:
NF Patients United
IBAN AT13 2011 1839 6900 1500
BIC: GIBAATWWXXX
Or choose a different payment method here
If you like, tag your local NFPU member organisation on social media:
Austria
NF Kinder
@nfkinder on Instagram
nfkinder on Facebook
Croatia
Croatian Neurofibromatosis Association
nfhrvatska on Facebook
Denmark
Dansk forening for NF Recklinghausen
@nf_danmark on Instagram
Ireland
NF Ireland
@nfireland on Instagram
NFAIreland on Facebook
Italy
Ananas onlus
@ananas_neurofibromatosi on Instagram
ananas.neurofibromatosi on Facebook
ANF onlus
@anf.odv.ass_neurofibromatosi
ANFneurofibromatosi on Facebook
Greece
Panhellenica Association of Patients and Friends with NF
@nfgreece_ on Instagram
zwhmenf on Facebook
Portugal
APNF – Associação Portuguesa de Neurofibromatose
@apnf.pt on Instagram
APNFpt on Facebook
Spain
AANF
@neurofibromatosis.es on Instagram
Asociación-de-Afectados-de-Neurofibromatosis-112237167003283 on facebook
ACNEFI
@acnefi on Instagram
acnefi on Facebook
Switzerland
SNFV
SNFV Neurofibromatose Schweiz on Facebook
The Netherlands
Neurofibromatosis Vereniging Nederland
@neurofibromatose_vereniging
NFVN-Neurofibromatose-Vereniging-Nederland on Facebook
Turkey
Türkiye Neurofibromatozis Derneği
@neurofibromatosisdernegi on Instagram
@NfDernegi2006 on Twitter
groups/1466216013613863 on Facebook
UK
Childhood Tumor Trust
@childhoodtumourtrust on Instagram
@ChildhoodTT on Twitter
childhoodtumourtrust.org.uk on Facebook
ABOUT NFPU
NFPU stands for NF Patients United, and is Europe’s umbrella organization around Neurofibromatosis. By combining the efforts of all organizations, we try to find answers on Neurofibromatosis. Find out more here.