Global Network of Neurofibromatosis Patient Organisations


NFPU annual meeting & best practice 2021

NF Patients United invites to the NF best practice & Annual Meeting 2021. It will take place on November 6th and 7thas a virtual event. We welcome all NF patients, patient organisations, caregivers and all interested to this meeting on NF best practice projects!

NF patients organisations – members from NF Patients United and non-members – will present projects they conducted in their countries, for to exchange experiences and learn from best practices. There will be presentations on the topics research & medicine as well as supporting patients and families with the diagnosis and life with NF. Besides patients organisations from Europe and beyond, speakers will be: Erik Legius, Scott Plottkin and Ignacio Blanco who present research on NF1, NF2 and Schwannomatosis.

The last part of the meeting will be interactive group discussions about future NF projects and developments. This is open for members of all NF patient organisations.


Find the final program here for download:
Program: NF Patients United Best practice 2021

Sponsor of the NFPU annual meeting & best practice 2021