Global Network of Neurofibromatosis Patient Organisations

NF Ambassador

NF International Summit

For the first time, LTF´s NFYA International Summit is live this summer in New Yourk city! Come meet a world class group of NF advocates, researchers and doctors. The summit is open to all members of the NF young adult community!

Are you a young adult living with NF and want to make a difference in your community?

The NF Young Adult Leadership Program is an opportunity for NF-affected young adults to learn effective advocacy skills and speak directly to policymakers about NF. The program is the first of its kind, allowing young adults to make a difference in the NF community.

Program priorities are to create leaders, advance research, and bring new voices to the forefront of advocacy.

Date & Time

NF Young Adult International Summit will take place in New York City. Virtual participation is also offered. So for all virtual participants from Europe the meeting starts appx. 5 hours later, which is shown here:
– 26. Aug. 2022 04:00 PM (CEST)
– 27. Aug. 2022 04:00 PM (CEST)
(Appx. European time is shown here)

Registration & More

You can register for the event and also register to get all info & news about the event under this link:

We are looking forward to your participation at the NF Young Adult International Summit! Contact us for further info:

The NF international summit is a joint project by the Littlest Tumor Foundation together with the Childhood Tumour Trust UK and NF Patients United.

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