Global Network of Neurofibromatosis Patient Organisations

NF Ambassador

Our Ambassador training in Lisbon

Our 2023 edition of the NF Academy is going to start tomorrow, this time it’s held in Lissabon!
We’re looking forward to a week together with 19 young adults from all of Europe who will participate in our Academy and receive a diploma as NF Ambassador.

In this week, NF experts will talk about mental health, patient advocacy and rare disease management in Europe. Together with our Portuguese partner Organisation Associação Portuguesa de Neurofibromatose we will accompany the future ambassadors to bring them one step closer to their goals which is to work on a better future for NF patients!