Global Network of Neurofibromatosis Patient Organisations

NF community

Does your teen have Neurofibromatosis?

Researchers from the Massachusetts Hospital are conducting a study “Resilient Youth with NF1 and NF2” . They are looking for families and young patients from 12-17 years who are interested in joining virtual group sessions starting soon. We invite you to take part in this study!

Attached you find the invitiation with details for the study.

Email the study coordinator, Millan Kanaya ( or the study PI, Dr. Ana-Maria Vranceanu (
They are happy to answer any questions that patients have, as they consider the study.

Please feel free to forward this invitiation to NF1 and NF2 patients!