Global Network of Neurofibromatosis Patient Organisations

Best practice projects on NF

NF Patients United will hold its general assembly meeting together with a public event about Best Practice Projects on NF on Dec. 10th, 2020 in Rotterdam. It will take place simultaneously with the European Neurofibromatosis meeting 2020 in Rotterdam. In the afternoon NF Patients will introduce all interested people to its projects. Then we look forward to best practices of organisations outside NF Patients United.

We are looking for projects of other patient organisations or individuals: if you want to present your project to the NF community on the NF Patients Summit in Rotterdam, please send us your ideas or your abstract:

Our sessions in the afternoon are open to all NF interested people. We welcome all interested people to the event!


Find details of the NF Patient Summit here (subject to modifications):