Global Network of Neurofibromatosis Patient Organisations

NF Ambassador

Young NF Patient´s Needs

Last summer NF Patients United launched its first NF young ambassador training. There young patients from all over Europe came together, got to know each other and learned about their disease. They had presentations by various experts on medicine and psychology as well as lectures about managing life with the rare disease Neurofibromatosis.

At the close of their education they together point out crucial areas, where NF patients need to see progress, and where patients need to be involved in: