Magazine

We spoke with Dr. Mindler from the Austrian Speising hospital what kind of treatments exist for children with NF1 who suffer from orthopedic problems. He specialized on bone abnormalities and has over 10 years experience in dealing with Scoliosis and tibia deformities.

In terms of mental health, for this edition we discuss how parents can deal with a medical intervention of their child. Surgeries, especially complex ones, can cause a lot of stress and anxiety in parents and the child. We spoke with the Austrian health and clinical psychologist Natascha Walik who gave advice on how to deal with those situations and feelings.

We also talked with the mother of Panagiotis, a young Greek boy who suffers from Pseudoarthrosis in the tibia and has had several surgeries. He is our Hero of the Month because he is thriving despite his orthopedic issues. For him and all the others young ones suffering from some type of NF, we have a Kids Corner that offers playful games for the upcoming warmer months and some DIY projects.

And lastly, I want to thank you for supporting NF Patients United and this online magazine. If you like our work, we would be pleased if you gave us a donation. Every small amount counts, so we can have more resources to better support people battling with all types of NF and continue to make this online magazine better!