Magazine

In terms of mental health, for this edition we discuss how to deal with NF2-related gradual hearing loss and how to cope in everyday life. Many people with NF2 or other rare diseases have hearing problems and even become deaf over time. This can be very frustrating and some may even try to avoid social interactions because of it. We talked with an affected person (Joanne Ward) and asked her for strategies on how to best deal with this issue. Joanne Ward is also our Heroine of the month and shares her inspirational, personal story to encourage others living with similar symptoms of NF2.
For the young ones, we have a Kids Corner that offers playful games and a children book from the Portuguese NF Organization APNF, called “The Adventures of Tito”, that explains NF in a children-appropriate way.
And lastly, I want to thank you for supporting NFPU and this online magazine. If you like our work, you can give us a donation. Every small amount helps and through that, we have more resources to better support people battling with all types of NF!