magazine menu toggle icon magazine menu toggle icon


Legal Disclosure

Contact information

Email us:

Postal address:
NF Patients United – Global Network of NF Support Groups
Servitengasse 5 /16
1090 Vienna
Austria – Europe

Central Registry of Associations Number: 1924149422

NF Patients United – Global Network of NF Support Groups
Hoflaan 9
6953AL Dieren
The Netherlands – Europe


This disclaimer is to be regarded as part of the internet publication which you were referred to on this website. If sections or individual terms of this statement are not, no longer or not completely correct, the remaining parts of the document remain unaffected in their content and validity.

Liability for the content of this website

The content of this website was created with the greatest possible care. However, we assume no liability for the accuracy, completeness and timeliness of the content. As a provider, we are responsible for our own content on these pages according to the general laws. However, we are not obligated to monitor transmitted or stored third-party information or to investigate circumstances that indicate illegal activity. Obligations to remove or block the use of information under general law remain unaffected. However, liability in this regard is only possible from the moment of knowledge of a specific infringement. Upon notification of appropriate violations, we will remove this content immediately.

Liability for Links to Third Party Websites

Our site contains links to external websites. Embedded content from other sites behave exactly as if the other site is visited. However, the content of these external websites we have no influence. Therefore we can not accept any responsibility for their content. The provider or operator of the sites is always responsible for the content of linked pages. The linked sites were checked at the time of linking for possible legal violations. Illegal contents were not apparent at the time of linking. A permanent control of the linked pages is unreasonable without concrete evidence of a violation. Upon notification of violations, we will immediately remove such links.


The operators of this website make every effort to respect the copyrights of others or to use their own or public domain works. The content and works on this website created by the site operators are subject to copyright. Third party contributions are marked as such. The reproduction, modification, distribution or any kind of exploitation outside the limits of copyright law require the written consent of the author or creator. Downloads and copies are permitted only for private, not commercial use.

Image sources

Photos and illustrations of this site: Canva, Pixabay and own material.


You have the possibility to subscribe to this newsletter. For that, NF Patients United needs your Email-address and your declaration that you agree to receive the newsletter. In order to provide you with targeted information, we also collect and process information voluntarily provided on areas on interest.

As soon as you have registered for the newsletter, we will send you a confirmation e-mail with a link to confirm your registration. You can cancel your subscription to the newsletter at any time. Please send your cancellation to the following e-mail address: We will then immediately delete your data in connection with the newsletter dispatch. This cancellation does not affect the lawfulness of the processing carried out on the basis of the consent until the cancellation.

Unsubscribe to the newsletter..

Privacy policy

It is important to us to protect your personal data sufficiently. We therefore observe the applicable legal European and Austrian provisions, in particular the Basic Data Protection Regulation (“DSGVO”), the Austrian Data Protection Act (“DSG”) and the Telecommunications Act (“TKG”) when we process your data.

What data do we collect?

When you join our association, we will record your name and email address. We use this information for the purpose of membership management, outreach and delivery of the simplistic relevant information to fulfill our (pre-) contractual obligations and due to our legitimate interests.

Will your data be disclosed to third parties?

We leave your personal information to the extent necessary to external service providers (processors), as IT service providers or other suppliers of tools and software solutions that support us also in the provision of our services. We also disclose your personal data to the extent necessary for membership management to external parties based on our legitimate interests (for example, accountants, legal representative) and the starting and test case to authorities and other public bodies in the mandatory extent.

How is your data protected?

We take appropriate technical and organizational security measures to protect your personal data. In addition, we are obliged to maintain confidentiality. Our concern in terms of DSGVO (legitimate interest) is to improve our offer and our web presence. Since the privacy of our users is important to us, the user data is pseudonymized.

What rights do you have over your data?

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.


Our website uses cookies. These are text files that are stored on your device using the browser. We use cookies to make our website more user friendly. Some cookies remain stored on your device until you delete them. They allow us to recognize your browser on your next visit. If you do not want, you can set your browser so that it informs you about the use of cookies and allow it only in individual cases. When disabling cookies the functionality of our site may be limited.


When visitors post comments on the website, we also collect data that appear in the comment form, the visitor’s IP address and user agent string (so that the browser is identified) to support the identification of spam.
An anonymous string can be created out of your e-mail address (also known as hash) and can be passed to the Gravatar service to check if you use this. You can find the privacy policy of the Gravatar service here: Once your comment has been approved, your profile picture will be publicly visible in the context of your comment.

What rights do you have?

You have to obtain information in a clear, transparent way that is easy-to-understand and it should be clear how we process personal data. You have the right to receive information about the personal data we process about you. You also have the right to correct inaccurate data and deletion of your data. You can also withdraw your consent for processing with an effect for the future. You may also be entitled to a restriction on the processing of the data, to opposition and to the right to transmit your data. You have the option to address complaint to the data protection supervisory authority.

The responsible data protection supervisory authority for this website is: Österreichische Datenschutzbehörde, Wickenburggasse 8, 1080 Wien, Austria, Europe.

Before submitting a complaint to the data protection supervisory authority or other questions, please contact us: