Magazine

Our mental health focus of this edition lays on how to deal with disfigurement in everyday life. Many people with NF1 or other rare diseases have cosmic problems and get stares and inappropriate comments from strangers. This can be very frustrating and some may even try to avoid social interactions because of it. We talked with psychologist Dr. Marie-Laure Armand and established strategies on how to best deal with those situations.

This edition, we have two Heroines of the month. One is Mercedes, whose face and body is covered with cNFs but who is still openly speaking about NF on TikTok and doesn’t let her appearance define her.
The second one is Megan Ross, an inspirational woman who lives with NF1 and has multiple neurofibromas but travels the world and runs marathons in her free time.

For the young ones, we have a Kids Corner that offers playful games and a online children book that explains NF in a children-appropriate way.

And lastly, I want to thank you again for supporting our online magazine. If you like our work, you can give us a donation so we have more resources to publish higher quality content!