Global Network of Neurofibromatosis Patient Organisations

Research on NF

Highly respected experts in the field of NF show actual research for NF Patients. Watch their presentations here:

NF1 Tumor Surveillance by Eric Legius

Eric Legius from the Centre for Human Genetics at the University of Leuven (Belgium) presents the new Guidelines for NF1 Tumor Surveillance in the NFPU Best practice 2021. These guidelines comprise recommendations for systematic screeing for NF 1 patients.

Presentation at the NF patients best practice 2021

New Schwannomatosis Guidelines
by Ignacio Blanco

Dr. Ignacio Blanco provides general information of the rare disease Schwannomatosis and the new management guidelines.

Presentation at the NF patients best practice 2021