News - NF Patients United

NF Awareness Month 2026 - official template

May is official NF Awareness Month

Share Your Experience: Take Part in the Rare Barometer Study!

November 11, 2025

NF Patients United team in Barcelona 2025

Learn more about NF and patient advocacy

time to accelerate - action on rare disease

Action on Rare Cancers

December 18, 2024

NF1 and Breast Cancer

October 11, 2024

Understanding NF2 podcast by Bradley Findlay

Understanding NF2

NF Online Magazine

October 9, 2023

Organisation of Care

Tumour surveillance guidelines for NF1

February 6, 2023