
Category: Research
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NF European Scientific Meeting – Manchester

First Guidelines for Schwannomatosis out now

Revised diagnostic criteria for NF1 and Legius syndrome

Children’s Tumor Foundation announces the launch of NF2 trial

Koselugo: first medicine approved to treat plexiform neurofibromas in patients with NF

Research update #1 2020 – NIH’s findings on Selumetinib

Meeting, Organisation of Care, Research
European Conference on Rare Diseases & Orphan Products in 2020 – ONLINE

Research update #3 2019
