Educating young NF Ambassadors
The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In a one week training course there are lessons on medical topics for NF, mental health and essentials for the work as an ambassador for other patients. This event is conducted together with one our NF member organisations in Europe.
2026: NF Academy in Rotterdam
We are happy to announce that this summer the NF academy will take place in Rotterdam. It is supported by the Erasmus MC. It will be an educational program, a mixture of joint discussions and individual work. Young patients as well as siblings of patients will learn about NF1, NF2 and Schwannomatosis, patient advocacy, patient involvement in research and how to deal with the challenges that they are facing.
Location: Rotterdam, The Netherlands
Date: Aug. 22nd – 28th, 2026
Participants can be patients and also siblings or parents of patients with NF
Age group: 19 – 35 years
Diploma: Certificate as NF Ambassador
As a participant you need to have: The willingness to become active NF patient advocate and support your national NF organisation. Adequate English-skills with level B1 and up is needed to follow the discussions and talks. You can test your language skills here.
Remember: There is still a lot of time to improve your English until start of the NF Academy!
Applicate for the ambassador training
Here you find info on how to apply for the NF Academy 2026 in Rotterdam
Support the NF Academy education with your donation:
#nfpatientsacademy
The NF Academy 2026 is conducted by NF Patients United together with:
We would like to thank our Academy sponsor Alexion Rare Disease for the generous support
NF Patients United is member of:
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