Global Network of Neurofibromatosis Patient Organisations


We have different types of membership in NF Patients United. All members are entitled to attend all events of the association and to use all facilities of the association.

FULL MEMBERS are registered NPO patient organisations that work for people with NF on a national level. They can nominate candidates for the executive board. They have the right to vote. They can receive financial support for their national projects from NFPU.

ASSOCIATED MEMBERS are individuals who are working on setting up an NF organization in their home country or existing NF patient organisations that do not fulfill the criteria to become full members. Associated members can also be patient organisations, which do not fulfill the criteria to become a full member yet.

FRIENDS are individuals or organisations, who are interested in becoming full members or associated members. They get informed about the procedure and requirements to become full or associated members and are included in our communication.

How to get Member of NFPU

We look forward to seeing your organisation become part of NFPU. For to get a new member at NF Patients United we would ask you to send us the following documents of your organisation:

  • Statutes (translated into English)
  • Annual report, including financial report from previous year
  • Letter of motivation
  • The NFPU membership form with all info for the membership fees, which you find here: