Mark your calendars!
The biennial European NF Conference returns this November, uniting leading experts from across the continent to present cutting-edge research and exchange perspectives on the latest treatment and therapy developments.
We are proud that this time the conference focuses on patient involvement in Neurofibromatosis care and research. It is organised in close collaboration between our member organisation NF Kinder and the Medical University of Vienna. And so the event reflects the strong partnership between science and the patient community driving progress in this field.
Find program and registration here:
NF Community Day by NF Patients United
NF Patients is proud to participate — and on November 15th, the day after the conference, we will host our Community Day, designed specifically for the patient & caregiver community for NF1, NF2 related Schwannomatosis and Schwannomatosis.
📅 Save the Date: November 15th
The program includes accessible expert presentations on current medical and mental health research outcomes. It is followed by an afternoon session in which member organizations share best practices and highlight successful projects. This is a valuable opportunity for patient organizations to draw inspiration and practical guidance from our NF Patients United network.
Register now to be among the first to receive further details about the program:
We will keep you updated here!
The NF Academy 2026 is conducted by NF Patients United together with:
We would like to thank our sponsor Alexion Rare Disease for the generous support
NF Patients United is member of:
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© 2026 NF Patients United
