NF Awareness

We are lauching the NF Podcast!

Living with NF means also dealing with complicated medical terms, endless questions and information that sometimes feels impossible to understand. That’s why we created the NF Podcast – a podcast that breaks down complex NF-related topics into conversations that are clear, understandable and relevant to everyday-life. No unnecessary jargon, no overwhelming explanation. Just trustworthy information for patients, caregivers and families who want to better understand NF and stay connected to the European NF community.

Soon, you’ll be able to explore questions like: 

  • Why can NF affect people so differently? 
  • What does gene therapy actually mean? 
  • Why is mental health such an important part of living with NF? 

You may be living with NF, caring for someone who is, or seeking to understand Neurofibromatosis. This podcast is for you. 

The first episode of the NF Podcast is going to center around mental health and is available on Spotify, Amazon Music, Apple Podcast, PODash & more.

Stay tuned!