Global Network of Neurofibromatosis Patient Organisations

NF Patients Community Day

Logo NF Community Day

Every 2 years the European NF meeting takes place. It brings together clinicians, researchers and patient organizations to discuss the latest discoveries in NF research and care. It is also a great opportunity for young investigators and doctors to discover the field of NF.

In addition to the scientific meeting (Oct 10-12) NF Patients United is organizing the NF patients community day on Sunday Oct 9th, 2022. All NF patients and caregivers are invited to attend the meeting in person at the conference or join virtually. There will be presentations by experts about NF, a Presentations of nominated NF Projects with a voting of the audience for the NF Patients United awards 2022.
A  hybrid format and live transcription for people with hearing impairments is offerd for your participation on site and virtual at the event throughout the program.

“NF Community Day”

Date: Sunday Oct 9th, 2022

Place: Mercure Manchester Piccadilly Hotel, Portland Street,


9:00 – 09:45 – Registration
9:45 – 10:00 – Welcome
10:00 – 11:00 – Session 1: Diagnosis & Access to Care
11:15 – 13:15 Session 2: Quality of life
13:15 – 14:00 – NF community award
14:15 – 15:30 – Functioning Aspects:
– Parallel Sessions (A) Schwannomatosis & NF 2
– Parallel Sessions (B) NF 1
15:30 – 16:15 – Panel Discussion

You can find the detailled program here.


At the NF Patients Community Day you can participate in person or participate virtually from your computer:

Personal participation

Please register for the NF community day 2022 using this online form . There is a small registration fee with GBP 5,- (or EUR 6,-) per person. Food and drinks will be provided during the meeting.
We only have a limited number of seats at the NF Community Day on site in Manchester. So please register soon to get your place there.
Registration deadline is on Sept. 28th!

Click here for your registration (in GBP)
Click here for your registration (in EUR)

Virtual participation

If you want to attend virtually please register here for the Community Day in Manchester:

Click here for virtual participation

We are happy to have you with us!

The NF Patients Community Day 2022, Manchester is supported by: