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  • best practice summit 2025 for patients and caregivers

    NF best practice summit 2025

    Hotel ILUNION Barcelona C/Ramón Turró, 196-198, Barcelona, Cataluña, Spain

    The NF Best Practice summit is a regular meeting for patients & caregivers organised by NF Patients United. Every year, we host this best practices session to share recent developments and discuss future prospects with the NF community in Europe and beyond. The event will bring together patients, researchers and academia. Closed captions are available […]

  • Group of 2024 NF ambassadors with inspirational speaker Amit Ghose and Emerson Cabral from Alexion

    NF Academy 2025

    Hotel ILUNION Barcelona C/Ramón Turró, 196-198, Barcelona, Cataluña, Spain

    The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In a one week training course there are lessons on medical topics for NF, mental health and essentials for the work as an ambassador for other patients. This year the event is conducted together with our local […]