Global Network of Neurofibromatosis Patient Organisations

NF Academy 2024

Educating young NF Ambassadors

The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In this one week training there are lessons on medical topics for NF, mental health and essentials for the work as an ambassador for other patients. This event is conducted together with one our NF member organisations in  Europe.

The NF Academy 2024 in Rotterdam

We are happy to announce that this summer the NF academy will take place in Rotterdam. It will be an educational program, a mixture of joint discussions and individual work. Young patients as well as siblings of patients will learn about NF1, NF2 and Schwannomatosis, patient advocacy, patient involvement in research and how to deal with the challenges that they are facing.

Location: Rotterdam (Netherlands)
Date: Aug. 24th – 30th, 2024
Participants can be patients or siblings of patients with NF
Age group: 19 – 35 years
Diploma: Certificate as NF Ambassador

Applicate for the ambassador training

Application for the NF patients Academy 2024 is open now! These are the steps to participate this in summer:

1. Contact
Get in touch with your national NFPU patient organisation and ask them, how they can support your participation and whether they can cover your costs for travelling to the venue. If there is no NFPU member organisation in your country, please contact us info@nf-patients.eu.

2. Application
Once you have clarified how you will get support from your national patient organisation, please applicate here:

3. Registration fee:
As soon as you receive info about your acception to the academy, you have to cover the registration fee, which is:
For NFPU member organisations: € 95,-
For other NF organisations: € 295,-


Does the NF academy ambassador training sound interesting to you – then we look forward to receiving your application!

If you have any question, please email us: info@nf-patients.eu


The NF Patients Young Academy 2024 is conducted by NF Patients United together with the Dutch NF patient organisation NFVN


Thanks to the support for the NF Academy 2024:

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