Global Network of Neurofibromatosis Patient Organisations

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NF Online Magazine

Dear NF Community, we have some exciting news for you. Not only will the NF Best Practice 2023 take place this weekend, but we are also going to send out our first newsletter very soon! It comes in form of an online magazine and will contain regular updates about NF research news, interesting interviews with NF specialists and psychologists, a hero or heroine of the month and much more. In each edition we will put our focus on one specific symptom that is relevant for either NF1, NF2 or Schwannomatosis patients and explain it in depth.

The first edition is going to be about plexiform neurofibromas, a typical symptom of people with NF1. Seize this opportunity to subscribe to the newsletter! The first edition is just published!

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