Tag: rarediseases

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Bild von Arek Socha auf Pixabay

COVID19 vaccination for NF Patients

Koselugo: first medicine approved to treat plexiform neurofibromas in patients with NF

NF Research

Research update #1 2020 – NIH’s findings on Selumetinib

European Conference on Rare Diseases & Orphan Products in Stockholm 2020 - ECDR

Meeting, Organisation of Care, Research

European Conference on Rare Diseases & Orphan Products in 2020 – ONLINE

The next decade for NF Patients in Europe

Science and research update #2 2019



		
					
			
				
				
					
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