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  • best practice summit 2025 for patients and caregivers

    NF best practice summit 2025

    Hotel ILUNION Barcelona C/Ramón Turró, 196-198, Barcelona, Cataluña, Spain

    The NF Best Practice summit is a regular meeting for patients & caregivers organised by NF Patients United. Every year, we host this best practices session to share recent developments […]

  • Group of 2024 NF ambassadors with inspirational speaker Amit Ghose and Emerson Cabral from Alexion

    NF Academy 2025

    Hotel ILUNION Barcelona C/Ramón Turró, 196-198, Barcelona, Cataluña, Spain

    The NF Academy is a program to educate young people to become ambassador for the rare disease Neurofibromatosis. In a one week training course there are lessons on medical topics […]

  • NF Community Day & NF Best Practice

    Virtual Meeting

    NF Community Day (morning) Neurofibormatosis research news Talks by experts for NF patients & caregivers NF Best Practice (afternoon) Talks by NF patient organisations for patient organisations REGISTRATION FOR FREE […]