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Corona, NF community

Cultural Travels across Borders

2020-04-20 — 0 Comments

Koselugo: first medicine approved to treat plexiform neurofibromas in patients with NF

Corona, Organisation of Care

What does the ongoing COVID-19 situation mean for patients with NF?

virus children

Get Creative: Treating Self-Isolation Boredom with Drawings, Photos & Videos   

NF Research

Research update #1 2020 – NIH’s findings on Selumetinib

COVID-19 in NF Patients

European Conference on Rare Diseases & Orphan Products in Stockholm 2020 - ECDR

Meeting, Organisation of Care, Research

European Conference on Rare Diseases & Orphan Products in 2020 – ONLINE

The next decade for NF Patients in Europe

Pediatric and Adolescent Oncology Clinic in Mitera hospital (Athens)

Research update #3 2019

CTF-NF Conference

Meeting, Research

Highlights from the global 2019 NF Conference in San Francisco



		
					
			
				
				
					
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