News – NF Patients United

Program for the NF Best Practice 2023

Our Ambassador training in Lisbon

Save the date for the NF Best Practice on Oct. 15th, 2023

NF Best Practice 2023

Survey on Newborn Screening

I can say Neurofibromatosis. Can you?

Rare Disease Day 2023

Organisation of Care

Tumour surveillance guidelines for NF1

This was the NF Community Day 2022

body with neurofibromas

Join this study for NF1 Care

NF European Scientific Meeting – Manchester

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