On the 15th of October, NF Best Practice 2023 will go into its third round. This time, the meeting will be held in the Netherlands, specifically in Rotterdam. From 9:30 AM until 3:15 PM, NF experts and experts from the Rare Disease Community will give research updates and updates about NF projects from the different member organisations. All talks are aimed at patients with NF1, NF2-related Schwannomatosis and Schwannomatosis and their caregivers as well as for all interested.
SAVE THE DATE!
* NF Best Practice *
Sunday, October 15th 2023
9:30 AM to 3:15 PM (CET)
Including life captioning in English and Dutch
There will be a virtual welcome speech from the Dutch pediatrician Dr. Rianne Oostenbrink about the project EU Pearl, followed by the Tumour Management Guidelines for Neurofibromatosis, a talk about breastcancer and NF1, a patient needs-research involving AI, a research project about NF1 and sexuality and many more. The participation is free!
For more information about the specific program, find the current timetable here:
JOIN our virtual NF Best Practice meeting with actual news from the Neurofibromatosis & Rare Disease Community:
The NF Best Practice is conducted by NF Patients United together with Neurofibromatose Vereniging Nederland.
Sponsors of the NFPU best practice 2023:
© 2023 NF Patients United